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Disability Narratives

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Video clip: Gabrielle finds that one way to manage is to try to carry on as normally as possible but the unpredictability of fatigue makes it difficult to plan her workload.

But my first neurologist said the people that he knows that does the best with MS are the ones that forget about it. I thought that's quite good advice, actually [laughing]. Especially as you can forget that you have certain, certain problems. Just being able to say I'm just going to live, and see what happens.

I wish I knew, because it's - MS is so strange. In that you can be fine for months, and then suddenly you wake up with horrible fatigue. Like barely drag yourself out of bed. Or it can be cumulative where it's - I feel a bit tired, today. Or, you know, more tired the next day. Oh, really, really tired now [laugh]. Like it’s quite weird how it works. And it's sort of the problem with not knowing what's going to happen. It's very difficult for me to go to my supervisor and say "I'm feeling quite tired today, and I think I'm going to be really, really tired [laugh] next week, can I just have Friday afternoon off? Because I don't know - I don't know if I'll be fine by Monday." So it's just gauging what sort of - what's useful and what's not useful is extremely difficult with MS.